tag:blogger.com,1999:blog-4452599540321027406.post7333391819693310340..comments2023-08-19T22:17:15.653+08:00Comments on The Right to Be Alive: The Day I Met DeathEvelyn Chuahttp://www.blogger.com/profile/07826025577231168295noreply@blogger.comBlogger51125tag:blogger.com,1999:blog-4452599540321027406.post-88185006477108795772018-10-07T21:55:53.051+08:002018-10-07T21:55:53.051+08:00For a lot of decades, the amino acid L-tryptophan ...For a lot of decades, the amino acid L-tryptophan was extensively <br />used to successfully treat despair.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-74411379220246393812018-06-30T12:03:12.068+08:002018-06-30T12:03:12.068+08:00Gracias, Anonymous (Jule 2015) for the doctor'...Gracias, Anonymous (Jule 2015) for the doctor's name and book. I was diagnosed with salicylate acid allergy in 2003 or 2004 and have been trying to remember Dr. Feingold's name. Cuidate, CL Page, Oakland, CACLhttps://www.blogger.com/profile/05863550309263521259noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-9673257140158118612018-03-19T21:06:06.064+08:002018-03-19T21:06:06.064+08:00Very good post. I'm facing some of these issue...Very good post. I'm facing some of these issues as well..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-51661482711450618832015-08-08T15:19:07.794+08:002015-08-08T15:19:07.794+08:00Yes, I've read about the Feingold programme. T...Yes, I've read about the Feingold programme. Thank you for the information and reading my blog. :) Take care.Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-48548293292932356592015-07-28T05:52:33.932+08:002015-07-28T05:52:33.932+08:00Hello! I'm very surprised to see no comments c...Hello! I'm very surprised to see no comments concerning the Feingold Diet here. Most Feingolders have some level of salicylate sensitivity and the good Dr. Feingold realized and published his findings in the 1970s. Are you familiar with this program? I'm thinking it might give you some good places to start in regard to eating manufactured foods, if you have any interest in that. Best of luck to you. I'm really enjoying your blog posts!! <br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-21665290005289763312015-06-10T23:18:13.100+08:002015-06-10T23:18:13.100+08:00Hi there! Thanks for stopping by. You can see an a...Hi there! Thanks for stopping by. You can see an allergist or your child's doctor and ask him/her to prescribe a prescription. The doctor will then place an order with the pharmacy. The pharmacy will send the order to MERCK US. This process will take about 2 months or so. I got mine from SJMC/Sime Darby Subang Jaya.<br /><br />All the best!Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-24741767864090762352015-06-10T01:13:20.504+08:002015-06-10T01:13:20.504+08:00HI Evelyn you are a true warrior!
I have a lil dau...HI Evelyn you are a true warrior!<br />I have a lil daughter who suffered from eczema covered from top to toe since infancy, wears ScratchSleeve 24/7, eats only chicken broth and few selected veggie, bath only in sea salt or vinegar, and had to shut off from the world during the haze. Thank God she is recovering after years of GAPS diet but she is still highly allergies to peanut. <br />I stumble across your blog when i was searching for Epi-Pen in M'sia. Do you have any idea where can i get the supply here?Unknownhttps://www.blogger.com/profile/11446684796932105997noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-71436507117347623852015-02-24T21:20:42.569+08:002015-02-24T21:20:42.569+08:00Hi Tayo! Thank you for dropping by and for the ver...Hi Tayo! Thank you for dropping by and for the very encouraging comment. I wish you all the best and that you will find good health and recover soon. Take care and do keep in touch. Do update on your journey to healing and health.Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-25285930385324588702015-02-24T14:00:25.786+08:002015-02-24T14:00:25.786+08:00Evelyn, you are so BRAVE! You're article has j...Evelyn, you are so BRAVE! You're article has just SAVED my life!!! I was so close to death I could feel it, my breathing was so shallow it scared me, I am in the midst of a 3 day severe migraine attack and my throat as usual is closed and swollen. I very much believe that my maker has bought me to your article for a reason and I am no longer a victim. I am going to demand an epi pen and fast track appointment today and I am going to recover and spread the word of this horrible condition! You are proof that it exists, can be fatal and also can be improved! Thank you so much and I am going to follow your blog and keep in touch!!! xx Miss Tayo KazzimAnonymoushttps://www.blogger.com/profile/06654167469767860273noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-89535184740828001202014-12-25T18:29:14.712+08:002014-12-25T18:29:14.712+08:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-21822851451068511432013-08-20T00:41:00.057+08:002013-08-20T00:41:00.057+08:00Thank you Yvonne. You are an amazing and strong pe...Thank you Yvonne. You are an amazing and strong person! :)Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-38655427451062379142013-08-18T13:41:52.547+08:002013-08-18T13:41:52.547+08:00Evelyn,
I am proud of you too. Some people learn ...Evelyn,<br /><br />I am proud of you too. Some people learn what you have learned early, some late. Some learn it quickly during a short period of mishap. Some take longer to learn it and need to go through tough trials to help them learn. You are definitely a fast learner.Yvonne Foonghttp://www.yvonnefoong.comnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-89174443896026032642012-08-02T21:12:51.628+08:002012-08-02T21:12:51.628+08:00Good health to the both of us! :)Good health to the both of us! :)Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-11567224585465217272012-08-02T21:12:19.499+08:002012-08-02T21:12:19.499+08:00Dear Pl, thank you for sharing your story and enco...Dear Pl, thank you for sharing your story and encouraging words. 25 years is a long time!!!! I am glad that you have fought the good fight and that you are doing well.Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-1471343161027634512012-08-02T14:02:17.405+08:002012-08-02T14:02:17.405+08:00Dear Evelyn,
Just some comfort that I had my firs...Dear Evelyn,<br /><br />Just some comfort that I had my first anaphylaxis shock about 25 years ago. At that time I was in AU studying and had repeated admissions during my studies. The doctors had done all the test and they could not narrow down the culprits but suspect strongly due to MSG, Penicilin and Metabysuphate.<br /><br />Initial years I was very careful what I consume but as time goes, has now managed to venture out to outside food with caution. I still occassionally have about 3-4 episodes of allergy attack per year with different degree of severity.<br /><br />All I can say after all these years is that life goes on and after some years it becomes easier. I even have a case where the ER doctor had made a remark that I am "still alive".<br /><br />So wishing the very best and hope things stabilizes for you with less surprises.PLnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-6918089331367559482012-04-02T18:32:20.131+08:002012-04-02T18:32:20.131+08:00Their reply is a bit slow. But don't worry, yo...Their reply is a bit slow. But don't worry, you'll get replies. <br /><br />Yeah, sometimes things happen. I was supposed to be salicylate-sensitive, but somehow it has progressed to chemicals too. My nose is super sensitive. I can tell the 'grade' of the food just by smelling it. I can tell whether the oil is recycled or not, the nitrates in the sausages, the cockroach which is hiding somewhere at the back of the house, the type of food which is being cooked by the neighbour, whether the food which is being reheated is overnight or fresh ... etc. I am a vampire where smells are concerned! HAHA! Or maybe a scent-dog!<br />I feel like I am going though morning-sickness all over again (just ten times worse)! Can't take smells!<br /><br />I was sensitive to smells after the anaphylactic attack, just not THIS sensitive. And it was mostly chemicals from detergents, paints, petrol smell at the petrol station, cleaning fluids, etc. Now it is food too!<br /><br />I am sure you have been given some kind of stomach meds like Controlloc or Nexium? I had Controlloc. The gastric and heartburns and stomach upsets caused by the steroids were horrible!Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-63105327065302729672012-04-02T07:05:19.720+08:002012-04-02T07:05:19.720+08:00Thanks Evelyn, I am part of the canadian and US ma...Thanks Evelyn, I am part of the canadian and US mastocytosis society forums, the mast cell/IA forum, a yahoo group for people with mast cell disease, POTS etc and had visited the IA info center blog but had not yet joined the yahoo IA group, so I just did!<br /><br />I have been on steroids, ketotifen, cromolyn, cetirizine, ranitidine and singulair for ten months but trying to wean the steroid. <br /><br />That is bizarre that your smell reactions just started. Mine started three months after my first anaphylaxis and I presumed was related to the steroid taper but it was after being exposed to garlic roasting. Ever since I can't smell anything without reacting.Anaphylaxinghttps://www.blogger.com/profile/01789237919418756331noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-48668810859184427722012-03-31T16:09:12.846+08:002012-03-31T16:09:12.846+08:00Hi! The reason I started this blog was to look for...Hi! The reason I started this blog was to look for people like me as up till today, I have yet to find someone like me in Malaysia. But I have found so many people like me all over the world through the internet! :) Something which is not a celebration, but I don't feel so alone.<br /><br />I am on 2 tablets of Xyzal 5mg everyday. I consume them after lunch. If I eat them after breakfast or dinner, I am a hallucinating zombie for the next two days. But after lunch, I am fine. Don't ask me why. I was on Prednisolone for about 2weeks after the major attack which I almost died 3 years ago. I had multiple jabs of Hydrocortisone in a duration of 1 week.<br /><br />No tests showed anything positive, which meant that they couldn't find out what was wrong with me. But my immunologist/allergist did a background study and history of my life and with his years of experience (he is 80 already!), he concluded that I was salicylate sensitive. <br /><br />I did go on the salicylate-free diet and I did improve. And if I pigged out on salicylate and did not keep a tab on what I was eating, the attacks would come again.<br /><br />Of late, I have become EXTREMELY smell-sensitive. Smells which did not affect me 3 years ago, now affects me very much and can trigger an anaphylactic attack in me. My allergist/immunologist said that somewhere along the line, I have become chemically sensitive too. <br /><br />Today, I can consume small amounts of food with salicylate. Still no outside food. But vegetables with salicylates are ok. But I still play it safe and limit them in minute amounts. I do not want it to add up in my system and trigger an anaphylactic attack again!<br /><br />Here is a link which the moderator of the online support group that I joined started. Have a read:<br /><br />http://www.iainfoctr.com/index.php<br /><br />You could also e-mail Candace Van Auken and share with her about your condition and she could help you. She herself is an anaphylaxis sufferer. <br /><br />Alternatively, you could join my support group and write about your condition and the women there could help you. They are from UK, USA, Canada, Brazil ... etc. <br /><br />Here is the link:<br /><br />http://health.groups.yahoo.com/group/iasupport/<br /><br />Take care and I hope I have helped you somehow.<br />Evelyn<br /><br />Once you have determined your triggers, things will settle down. Mine did. That is if I do not blow and explode in anger like a crazy woman and cause chemicals in my body to go haywire and trigger an anaphylaxis. That is what I noticed about myself.Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-3787938261398170382012-03-31T08:32:58.758+08:002012-03-31T08:32:58.758+08:00Oh my gosh. I feel like I've found a relative....Oh my gosh. I feel like I've found a relative. I had anaphylaxis that wouldn't quit and I guess I am in the throws of trying to get out of a reactive state, reacting to smells, foods you name it. I would be SO interested in what you found helped as you are one of few that seem to have gone through something similar... are you off medications now? I am on SO many and trying to get off steroids. How did your doc know it was salicylate sensitivity? Do you think it was? <br /><br />Here is my blog<br /><br />http://mastcelladrenalinsufficiencypots.blogspot.ca/Anaphylaxinghttps://www.blogger.com/profile/01789237919418756331noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-66057611094345442632012-03-03T16:42:06.159+08:002012-03-03T16:42:06.159+08:00Thank you! :)
I wish your daughter even better he...Thank you! :)<br /><br />I wish your daughter even better health. Yes, it is very frustrating. To keep on keeping tabs on the amount of salicylate I consume, was exposed to or used. I never know when an attack will come. I try my best and hope for the best. And I pray that I will be around and in one piece until my 7-year old son is a grown-up!Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-53532441460029520072012-03-02T20:26:32.109+08:002012-03-02T20:26:32.109+08:00I have to add to this because I have had my daught...I have to add to this because I have had my daughter following the Failsafe diet and I have been using the Failsafe Cookbook since 2005. She is now 12 and well when she keeps to her diet. I have great fear regarding medication and have spent more time than I can tell you trying to get accurate information and help. More people need to know about the dangers of salicylate intolerance. I am so glad people are responding to you. It has been a very isolating experience for my daughter and myself but we are so happy that her health has gradually improved but still frustrated. It seems that there is a problem with lack of enzymes in the body and the phenol sulphur transferese pathway but it is very complicated and needs to be researched and studied.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-1480268294491526142012-02-08T08:00:23.708+08:002012-02-08T08:00:23.708+08:00Hi Tigger! Thanks for dropping by. Yes, I have hea...Hi Tigger! Thanks for dropping by. Yes, I have heard and read snippets on that book. Thank you! I wish you health!Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-79539257410144329032012-02-08T01:46:29.101+08:002012-02-08T01:46:29.101+08:00Thanks for sharing your story.
I am now followin...Thanks for sharing your story. <br />I am now following the Failsafe Diet at the moment...http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/ They have excellent information about living chemical free and if you can get hold of the book Friendly Food that is helpful as well, as it has recipes as well.<br />Sue Dengate's website is also good. http://fedup.com.au/ She also has a good book called The Failsafe Cookbook as well. There is also a Failsafe eating support group on facebook as well. <br />Thanks for reading my blog. :) (thekiwione wordpress)Tiggeronlegshttps://www.blogger.com/profile/14703516561969484846noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-34681879683197791262012-01-30T14:13:55.603+08:002012-01-30T14:13:55.603+08:00Hi Irene! Thank you for dropping by. Tell Sharon t...Hi Irene! Thank you for dropping by. Tell Sharon thanks. I have not even met her! :) Your daughter has to eat only flat breads? What type/kinds of bread do you make or buy for her? Do keep in touch. And all the best for your daughter. You are doing an amazing job in caring for her and giving her the best.Evelyn Chuahttps://www.blogger.com/profile/07826025577231168295noreply@blogger.comtag:blogger.com,1999:blog-4452599540321027406.post-1015178495830598302012-01-29T22:56:27.668+08:002012-01-29T22:56:27.668+08:00Evelyn, I read your post with deep admiration for ...Evelyn, I read your post with deep admiration for you, thanking God at the same time for your perseverance, new outlook and never say die attitude. I got the link to your website from Sharon, pauleman's wife. My 7yo girl is highly allergic to dust mites and eggs and yeast/candida. She is also seeing dr yadav for consultation, but a lot we have to research ourselves. She gets, or sometimes we get this annoying reactions from people who go "what? So poor thing! Everything also cannot eat!" but yea, she gets the best food, mostly organic, fresh and home cooked! She is not well yet, many times I cry out to GodAnonymoushttps://www.blogger.com/profile/08258163158330408833noreply@blogger.com