Monday 30 September 2019

A Very Perplexing Situation

It’s been the same every year. July/August is the time I catch a flu every year. At other times of the year, I can get sneezed at, or coughed at, nothing would happen. But come July/August, no matter how I try to evade it, it will come out from an unexpected corner, shout ‘BOO’ and strike me.

This year was no different. 

The mother of all flu struck in mid-August. I did not have any sorethroat at all this time and only had a very mild fever. By one week I was well again. And it didn’t end up in a cough! No cough at all this year. I thought that my immune system must have gotten so much stronger. How wonderful I had thought.

I started to have terrible joint and muscle pains. But then again, all these viruses cause joints and muscle pain. But it got so severe that I was having trouble walking. I went to the ER and the doctor did blood tests and swabbed for influenza as it was ‘influenza season’. Everything came back normal and he said that I most probably had a post-viral myalgia. The doctor told me to get more rest and wait it out.

As time went on, I started to have more pain. My bladder hurt to the point I thought I was down with a severe bladder infection. And then my back hurt where the kidneys are. Every movement hurt so much. Once again, I went to the ER. They again did blood tests and this time for the kidneys and liver too. They also tested my urine. All results came back excellent! I was in ‘perfect health’!! The doctor said if I was worried, I could take some antibiotics for a week. I decided against it as all the results were excellent. I thought it could be my ‘voiding dysfunction’ which was acting up due to me being ill.

And then I started jumping up from my sleep in the middle of the night from pain. I felt as though fire was coursing through my veins. And then a fiery itch would start. My muscles were so weak and my joints felt as though they were ‘locked up’. My bones felt like they were corroding. I couldn’t walk down the stairs without feeling as though I could break my ankle at any point of time. Climbing up the stairs was even worse. It became so difficult to even bend my knees. 

The fatigue was terrible and I started feeling like I caught some bug.  I started feeling feverish but yet I had no fever. 

As the haze this year was so very bad and extra toxic, I thought it was the haze that was affecting me. I had gone to the hospital twice and twice the blood tests at two different times came back excellent. 

And then the intensity reduced and I thought I must have fought off whatever bug that had invaded me. I continued to move and walk as much as I could. 

It was then that I suddenly noticed some red dots at the bottom of my legs. They didn’t itch or hurt. And they were just a few little dots. So I just left it but observed them. Soon they became bigger than dots and started to spread to the back of the bottom of both legs. And they turned dark red and then became purple. 

I then went to see a doctor about it. He said I had musculum contagiusum virus which spreads by contact! Where did I get that from? Could it be from the holiday? The doctor had no idea too. He told me that I would be fine after a few weeks or a month. He also said that it is a self-contained virus. I came home and threw away my razor and bath scrub. I was worried about spreading it to both the guys that I told them not to hug me or even touch me. I thought my immune system was really screwed to have contracted such a virus. 

And then the stomach pains came. They were not gastritis or even reflux pain. The pain felt so different. Something was really not right. By now, the red spots had spread to my knees and thighs and to my arms. Funny that my body and face were spared. It was only the legs and arms. Which virus does this?!

By this time, I was in so much pain that I felt as though I had arthritis, fibromyalgia and rheumatism all at one go. The 1 to 10 pain chart that the hospital used to gauge pain could be thrown out of the window. I was on Richter scale 9 to the point tsunami had wiped out everything. My joints, nerves, bones and muscles were in chronic pain. I could barely walk by this time. I was shuffling. Every movement took great effort. 

I became delusional. I thought finally Death had caught up with me. I managed to evade Death for 10 years and now my time is up.

I thought I had lupus, or even multiple sclerosis. Maybe I even have what Stephen Hawking had! Or worse, Parkinson’s.

I thought maybe in my past life I was a murderer or rapist or even a psychopath serial killer. And karma has caught up with me. 

Or maybe I had cancer and I was in my last days. 

Maybe I was imagining all of these and that I was actually losing my mind.

It came to a point that I was ok with dying. 

I slapped myself mentally and went to see another doctor. He said I had folliculitis. I told him that I had used up every single steroidal cream in the house. Hydrocortisone, Elomet, Fucicort, Beprospan. You name it, I’ve tried it. If it was folliculitis as the had doctor said, it would have stopped it. He said sometimes oral antibiotics are needed plus a soap with sulphur to stop it.  I told him to write me a referral to see a dermatologist as I wanted everything to stop. I then asked him about this fiery pain coursing through my veins. This extreme pain that I was in. I felt like I was Elizabeth Sherman from Hellboy. I felt like I was doused with kerosene and set on fire. He gave me vitamin B12 to help the nerves.

I made an appointment to see the dermatologist that very same day. And when I saw the doctor, and after she saw my legs and heard me explain the whole history of what had happened, she smiled a very sad smile and said,

“You have vasculitis.”

What?!? 

What on earth is that?!? 

“It’s an auto-immune disease and your body decided to attack itself after an illness.”

I had disbelief on my face. 

“Did you fall sick?” 

“Did you get joints and body aches?”

“Did you get bad abdominal pain?”

“And the spots started only at the bottom of your legs!”

Everything was a yes. 

“It’s confirmed - you have vasculitis!”

Shit.

I still couldn’t accept what she had said. 

“Your immune system attacked your blood vessels and they became inflamed and burst,” she continued. 

She said my immune system had fought off the virus but was so over stimulated that they continued fighting even when the virus was already defeated. They turned and attack myself. 

The bad news was that vasculitis could attack the organs too and cause severe damage. The dermatologist sent me for blood tests and urine tests. When I went back to see her the next day, she said the blood results were fine. My kidneys and liver were still functioning well. My red blood cells were still good. That meant I wasn’t bleeding to the point of being anaemic. I was still ok. Since I was still ok, the doctor decided not to put me on steroids. But I was to return the following week to have blood and urine tests again.

The dermatologist also said that once a person has vasculitis, it is for life. It doesn’t go away. And one would never know when it would strike again. She said it’s like having asthma. No one knows when asthma could strike or when it could just lie dormant. 

I felt numb upon hearing this. I have fought so well for the past 10 years and had gotten to a place where I could actually have bites of outside food here and there. I could tolerate food with high salicylate levels so much now. My health had improved so much that I only fall sick once a year without consuming supplements where else people who eat supplements fall sick so many times a year. I was at a good place in life and this shit had to happen. And of all things, it had to be an autoimmune disease. 

I was still in so much pain. 

The pain peaked the following day to the point that I had to shut my mind off in order to survive the day. By night time, I decided that I couldn’t wait until the following week to see the doctor again. I went to the ER the next day. I was in so much pain that I begged the doctor for steroids!!!! The word ‘pain’ was an understatement. I was in the lowest level of hell where the demon called Pain had overtaken my body. I told the ER doctor that I wanted a gun to blow my brains out. ( I now think that chicken pox pain is a walk in the park!)

He again confirmed that I had vasculitis and he said it causes pain to such levels. He said it also causes abdominal pain. That was what I had been having. He referred me to a rheumatologist. And they took blood again to run more tests. 

They injected Tramadol into my veins to give me some relief. 

Since Tramadol causes nausea and vomiting, it is usually administered together with an anti-vomit medication. But I have bad side effects to anti-vomit medication. It causes a feeling of doom and a panic attack for me. Besides, I don’t get nausea or vomit with Tramadol. So I did not take the anti-vomit medication.

The rheumatologist said that it’s definitely vasculitis that I was having. She believed that it was virus induced. My blood tests came back excellent again. And I tested negative for arthritis. And based on the blood tests results, it wasn’t lupus too. She said my nerves had become so overly sensitive from the viral sickness. They had become heightened. So she put me on LYRICA to help settle the hypersensitivity of the nerves while the body slowly overcomes the vasculitis attack. Steroids is the last option if the body is unable to overcome the vasculitis attack. 

Right now LYRICA is heaven sent. The pain has reduced so much. But the side effects are drowsiness and dizziness for me. I’m currently trying to adjust the timing of the medication so that when it wears off, I’m able to at least function for that period of time. The rheumatologist said that it causes brain fog too. Brain fog is better than pain anytime. 

Looking back at my food diary where I noted down all that was happening for these 1 1/2 months, everything now makes sense. The pain, feeling ill, the fatigue and the rash. Right now I am unable to feel anything. I just feel numb. Maybe partly it’s due to the medication - brain fog. Maybe it hasn’t sunken fully yet into my brain that I have vasculitis. Maybe I’m just exhausted from fighting the pain. I’m currently still feeling terribly ill from the vasculitis. I'm just going to rest and stay numb and blah until I can find it in me to decide what's next. 

And then I’ll try to rise up again. 

P.s. I have written posts for this blog until mid-November. 


Wednesday 25 September 2019

The Boba Mania

For the past one year, many Malaysians have fallen into some state of mania where bubble teas (boba) are concerned. If you're wondering what the craze is all about, don't ask me. I have no idea. All I know is that people have been paying a lot of money to guzzle sugar.

This drink originated from Taiwan during the 1980s. The word 'boba' in Thai means chewy little pearls which are made from tapioca. Tapioca is derived from the cassava root. It is tasteless.

This bubble tea drink has a tea-base which is combined either with milk or fruit. It is then combined with the sweetened little tapioca balls. If it is milk tea, then powdered milk is used although fresh milk is the more famous ingredient.

Since the pearls are gluten-free and tasteless, they are mixed with brown sugar to give it flavour and the distinctive black colouring. The texture of the pearls are similar to gummy bears.



*picture taken from HERE

Click on The Hidden Sugars in Bubble Tea

Click on Brown Sugar Milk Tea is the Unhealthiest Milk Tea

Click on Boba Tea Has 2x More Sugar than Coke - 20 teaspoons!

Click on What's in My Bubble Tea?

Boba Health Concerns
*Back in May 2011, DEHP (which is a chemical plasticiser and potential carcinogen which is used to make plastic) was found in drinks and juice syrups in Taiwan. It became a huge scandal where the manufacturers were fined heavily. DEHP was then found in a syrup which was used to make bubble tea in Malaysia. 
Then in August 2012, scientists from the Technical University of Aachen (RWTH) in Germany analyzed bubble tea samples in a research project to look for allergenic substances. The result of their search found that the products contain styrene, acetophenone, and brominated substances, which can negatively affect health.[***] The report was published by German newspaper Rheinische Post
In May 2013, the Taiwan Food and Drug Administration issued an alert on the detection of maleic acid, an unapproved food additive, in some food products, including tapioca pearls. The Agri-Food & Veterinary Authority of Singapore conducted its own tests and found additional brands of tapioca pearls and some other starch-based products sold in Singapore were similarly affected.
In May 2019, approximately about 100 undigested tapioca pearls were found in the abdomen of a 14-year-old girl in Zhejiang province, China after she complained of constipation.
In July 2019, Singapore's Mount Alvernia Hospital warned that the sugar content of the bubble tea was too high. The risk of diabetes and cardiovascular disease was high if one were to consume these drinks frequently. 
*taken from here


*picture taken from HERE
The boba mania at Sunway Pyramid. 

Friday 20 September 2019

A Respite From the Haze! (Part 3)

We then moved back up to Malaysia and stayed for 3 days at Somerset at Puteri Harbour, Johor. Again, the place was scent free!







We did some shopping and rested before we came home.

Partial view of the bay from the balcony.
A live band every night. They played a wide genre of music from Malay songs to Rod Steward, to Bryan Adams, Jason Mraz and lots more. 4 hours every night of wonderful music. 
The day after we arrived home, I got the flu. Well, it's July/August every year and it has been happening for 5 years now. At least I fell ill AFTER the trip and not during the trip.



Sunday 15 September 2019

Everybody Knows

Once upon a time, there was a little village called Veggie Land. Everything was perfect and all the vegetables thrived wonderfully in their little own vegetable world. Or so they thought.

A group of crows invaded Veggie Land and started to feast upon the vegetables. But the tomatoes sacrificed themselves. They catapulted themselves and exploded on the crows. The crows were wounded. They gave up and left. The whole of Veggie Land looked like a blood bath. Everyone then took the splattered tomato seeds and planted them. But no one noticed the big pile of crow dung under the huge bonsai tree.

One year had passed and Veggie Land had bloomed again. The tomatoes grew like weeds and had produced much bigger tomatoes. In fact, everything was growing bigger and better than ever. The vegetables felt that it was the sacrifice of the tomatoes which had paid off. 

And then it happened. A noxious smell started to permeate the air every evening. Hardly any bees came by anymore. In fact, there weren’t any insects hanging around anymore. The pests that once plagued them too had disappeared. Something wasn’t right but nobody could figure out what it was.

The vegetables sent some scouts out to investigate the source of the smell. And they came back with a few sacks full of cabbages!

“We found these growing under the huge bonsai tree,” said the four-angled beans scouts.

Brussel Sprout immediately spoke up and condemned the cabbages for causing distress to the inhabitants of Veggie Land. 

“Aren’t you both from the same family?” asked the okras.

“Who is my brother and who is my mother?” retorted Brussel Sprout . “I have been here forever. Have I caused any problems all this while? Everybody knows me."

Everyone kept quiet. 

“What shall we do with them?” asked the tomatoes. 

Suddenly the air reeked once again with the pungent smell.

“Does that not prove that we are not the cause of the problem?” asked the cabbages. 

“We will decide tomorrow,” said the sage.

That night the intensity of the smell became worse and a few of the vegetables shrivelled up and died. The whole of Veggie Land was in chaos as every vegetable panicked. 

Brussel Sprout declared that he will lead the veggies of Veggie Land to a safer place. 

“But where?” the sweet peas asked. 

“Anywhere but here,” said the corns hastily. 

As they were about to leave, an unexpected thunderstorm lashed upon Veggie Land. The rain caused a delay to their move. Brussel Sprout was upset but he had no choice. 

That night, as Cabbage tried to sleep, he was disturbed by a tiny sound. As he peeked from his cabbage leaves, he saw Brussel Sprout sneaking away in the dark. He decided to follow. But before he left, he whispered something to his fellow cabbages. 

He saw that Brussel Sprout stopped at the top of the hill. He saw another figure come out from behind the trees. Cabbage quickly hid behind a huge rock and listened. 

“Why are you still in Veggie Land?!” the figure asked.

“I’m sorry Boss. The thunderstorm caused some problems. We will move tomorrow,” Brussel Sprout replied.

“I do not want any more hiccups. This has dragged on for far too long. I want this settled by tomorrow!” the figure said harshly. “Shall I take away what I’ve been giving you and the rest?” the figure continued.

“NO! It won’t happen again,” Brussel Sprout replied.

As Cabbage moved backwards to slowly retreat back to Veggie Land, he stepped on a twig and it snapped.

The Boss disappeared into the trees. Brussel Sprout jumped and ran towards where Cabbage was and caught him. 

“Let me go!” Cabbage cried as he struggled. “I’ll tell them all what you’ve done!” 

Brussel Sprout dragged Cabbage all the way back to Veggie Land. When they arrived, he threw Cabbage on the ground with such force that it awoken many of the veggies. 

“Look who I found sneaking around! I’m sure he’s up to no good,” Brussel Sprout told the veggies in a loud voice. The rest of the veggies woke up because of the commotion and gathered around to see what was happening.

Cabbage stood up and said, “He was with someone whom he called Boss. And the Boss wants all of you to move. That’s why Brussel Sprout has been pushing all of you to move! The Boss has been giving him something in return for following him."

Brussel Sprout retorted, “And they would believe you, a stranger, over me?”

“Cabbage! Look what we found!” said the cabbages as they emerged from behind the crowd.

They threw huge bottles of herbicides, pesticides, insecticides and fertilisers in front of the crowd. Cabbage took the opportunity to attack Brussel Sprout even more.

“Look at what he’s been taking! That’s why he’s so huge. Have you ever seen a brusell sprout the size of a melon?! And that was what killed those veggies," said Cabbage while pointing to the bottles of fertiliser and herbicides. 

Everyone was silent.

Brussel Sprout snickered, "Everybody knows! Everybody knows that it's now or never. You're either an idiot or a naive little cabbage."

"Have you not seen the skies? Oh yeah, I forgot. You were hiding under the bonsai tree, being shaded from everything that's been happening. Let me fill you in. There's a fire raging on the west of Veggie Land. On the east there's this dark big cloud. Everybody knows that the Plague is coming. And everybody knows it's fast moving. So what do you propose?"

Cabbage was dumbfounded for a second. When he found his voice, it quivered. "Who is the Boss? And where is he taking everyone to? What does he want to do with all the fellow veggies? And what about all these?" asked Cabbage pointing to the bottles.

"All right. That's enough!" Turning to his fellow brussel sprouts, Brussel Sprout barked, "Round 'em up! Round Up! ROUND UP!!"

Cabbage and his fellow cabbages struggled as Brussel Sprout's fellow brussel sprouts captured them. 

"Wait!" said Junior Okra. "I would like to know where we are going." 

"Everybody knows the boat is leaking," said Brussel Sprout. "Are you gonna be the one who wants to drown? It doesn't matter where we are going. We are leaving and that is final!"

Soon there was grumblings among the vegetables. Some decided there and then that the move was uncertain and vague. 

"ROUND THEM ALL UP! ROUND UP!!!" shouted Brussel Sprout as his patience wore thin.

The veggies who opposed to the move were tied up and thrown onto a cart. Everyone took whatever they could and started the exodus. Cabbage struggled against the ropes that bound him. And then he saw the land and the skies clearly for once. The fire that was raging covered the whole west side of the forest. It went on and on and on. There was no ending to it. And on the east was the fast moving Plague, which made the skies so dark that black was an understatement. 

As they arrived at the river dock, the figure that Cabbage saw with Brussel Sprout emerged from the darkness. It was a figure in a robe and it was carrying a scythe.

"Boss, I have done what you had asked me to do. Will you keep your promise in continuing to give us what we need?" asked Brussel Sprout referring to the bottles that the cabbages had found. 

In one swift movement, the scythe sliced Brussel Sprout into half.

Cabbage closed his eyes in defeat. He heard the corns sing as the Boss went on to slice one veggie after another, "Everybody knows the deal is rotten. Everybody knows that the fight was fixed. Everybody knows the good guys lost.. That's how it goes. Everybody knows."

Then there was silence.

--------------------------------------




Everybody Knows by Leonard Cohen

Everybody knows that the dice are loaded
Everybody rolls with their fingers crossed
Everybody knows the war is over
Everybody knows the good guys lost
Everybody knows the fight was fixed
The poor stay poor, the rich get rich
That's how it goes
Everybody knows

Everybody knows that the boat is leaking
Everybody knows that the captain lied
Everybody got this broken feeling
Like their father or their dog just died
Everybody talking to their pockets
Everybody wants a box of chocolates
And a long-stem rose
Everybody knows

Everybody knows that you love me baby
Everybody knows that you really do
Everybody knows that you've been faithful
Ah, give or take a night or two
Everybody knows you've been discreet
But there were so many people you just had to meet
Without your clothes
And everybody knows

Everybody knows, everybody knows
That's how it goes
Everybody knows

Everybody knows, everybody knows
That's how it goes
Everybody knows

And everybody knows that it's now or never
Everybody knows that it's me or you
And everybody knows that you live forever
Ah, when you've done a line or two
Everybody knows the deal is rotten
Old Black Joe's still pickin' cotton
For your ribbons and bows
And everybody knows

And everybody knows that the Plague is coming
Everybody knows that it's moving fast
Everybody knows that the naked man and woman
Are just a shining artifact of the past
Everybody knows the scene is dead
But there's gonna be a meter on your bed
That will disclose
What everybody knows

And everybody knows that you're in trouble
Everybody knows what you've been through
From the bloody cross on top of Calvary
To the beach of Malibu
Everybody knows it's coming apart
Take one last look at this Sacred Heart
Before it blows
And everybody knows

Friday 6 September 2019

Shitty Weather

Free of haze with clear view of the hill!
The hill has disappeared! 


Stay indoors Klang Valley folks!

Thursday 5 September 2019

A Respite From the Haze! (Part 2)

Right below our apartment was a small mall which had a Japanese supermarket called Meidi-Ya.


Clean, neat and they had so much stuff! I enjoyed browsing through every aisle.


Singapore's new airport with its own indoor park.
The guys had lunch at this place.
A 1-Star Michelin!
Very allergy savvy!
A very porky noodle!
We then walked on suspended nets. Had quite a bit of exercise here!
We were 5 storeys high! Certainly not for people with fear of heights.

East Coast Park! Free from haze.
Jogging and cycling paths. And no rubbish in sight.